What do nurses do with CF patients?

Your CF nurse is your primary contact and is there to address your concerns, answer questions or direct you to the right CF care team member when discussing a specific part of your treatment plan. CF nurses also have the primary responsibility of providing CF education at initial diagnosis and throughout life.

Who manages cystic fibrosis?

Physician (usually a pulmonologist, or lung specialist) Program coordinator.

What kind of medical assistance will a person with cystic fibrosis need?

Options for certain conditions caused by cystic fibrosis include:

  • Nasal and sinus surgery. Your doctor may recommend surgery to remove nasal polyps that obstruct breathing.
  • Oxygen therapy.
  • Noninvasive ventilation.
  • Feeding tube.
  • Bowel surgery.
  • Lung transplant.
  • Liver transplant.

What professionals are involved in cystic fibrosis?

Your CF care team may include a pulmonologist, nurse coordinator, dietitian, psychologist, respiratory therapist, pharmacist, and social worker. And at various times, you may focus more on your cystic fibrosis care with one type of health care provider than another.

What is the oldest cystic fibrosis survivor?

At 86, Marlene Pryson may be one of the oldest individuals living with cystic fibrosis. During her long life, she has dedicated many years of service to helping CF families as a CF clinic coordinator and family liaison.

What professionals work with cystic fibrosis?

Other potential CF care team members

  • Physical therapist. A physical therapist (PT) may be on a CF care team to develop an exercise program to help you manage your physical health.
  • Psychologist.
  • Pharmacist.
  • Otolaryngologist (ENT)
  • Gastroenterologist.
  • Endocrinologist.

How is cystic fibrosis monitored?

lung function testing with spirometry (including forced expiratory volume in 1 second [FEV1], forced vital capacity [FVC], and forced expiratory flow [FEF] 25–75%) in adults, and in children and young people who can do this. If spirometry is normal at a routine review, consider measuring lung clearance index.

How can a social worker help someone with cystic fibrosis?

We make phone calls, write letters of advocacy, refer to local helping agencies and attend meetings or appointments with the patient. Some patients have higher need for a variety of reasons, and we are then more intensively involved, working alongside them with other agencies.

Why can’t cystic fibrosis patients live?

For people with CF, being close to others with the disease puts them at greater risk of getting and spreading dangerous germs and bacteria. This is called cross‐infection. Not only are these dangerous germs difficult to treat, but they can also lead to worsening symptoms and faster decline in lung function.